Living with Cleidocranial Dysplasia can feel isolating at times, especially when you may not know anyone else who shares the condition. CCD Smiles created the CCD Smiles Conference to bring the CCD family together in a supportive, understanding, and welcoming environment.

What Is the CCD Smiles Conference?

The CCD Smiles Conference is organised specifically for people living with Cleidocranial Dysplasia and their families. The conference is designed to offer connection, education, and reassurance in a space where everyone is understood and respected.

Held every other year in the United States, the conference brings together individuals of all ages who are affected by CCD. For many attendees, it is the first time they have met someone else who truly understands what living with CCD is like.

What Happens at the Conference?

The CCD Smiles Conference combines shared experiences with trusted information. Attendees can take part in educational sessions led by medical, dental, and genetic professionals who have experience with CCD. These sessions help individuals and families better understand the condition and feel more confident when navigating care and treatment.

Alongside the educational sessions, there is time for open conversations, shared meals, and relaxed social moments. These opportunities allow people to form meaningful connections, share personal experiences, and build lasting relationships within the CCD family.

Why the Conference Matters

Many people with CCD grow up without meeting others who share the condition. The CCD Smiles Conference helps change that by offering reassurance, understanding, and a strong sense of belonging within the CCD family.

The conference supports both physical and emotional wellbeing by providing practical medical information alongside encouragement that comes from shared lived experience. For many, attending the conference is a powerful and positive step in feeling seen, supported, and understood.

Thinking About Attending?

If you have CCD, or care for someone who does, the CCD Smiles Conference is created with you in mind. You do not need to have all the answers or know exactly what to expect. Simply being there is enough.

Whether you are newly diagnosed, supporting a child with CCD, or have lived with the condition for many years, the conference offers a welcoming space built on compassion, respect, and shared understanding.

Learn More

For official details about upcoming CCD Smiles Conferences, including dates and locations, visit the CCD Smiles website. All information is provided directly by the organisation and reflects their commitment to supporting the CCD family.

Website - https://ccdsmiles.org/events/